When Judging Someone’s Appearance, Think Before You Speak By Lisa Mulholland

Something happened to me this week that I just feel I need to share.

After a tumultuous few months of my health spiralling out of control, hospital admissions, and all manner of tests, as well as launching a complaint against my former GP for negligence (that’s a long story for another blog): I decided to move GPs. I quickly got diagnosed with diabetes and have been trying to come to terms with that, amongst a long list of other health conditions and chronic illnesses; but at least I finally started to feel like I was being taken seriously.

My diabetic specialist was really supportive this week and has finally started me in some medication. She even said “you should have been treated a long time ago, and the medication will not only help the diabetes but help you lose weight”. I was relieved and feeling very positive.

I’m determined to beat diabetes.

Just one final hurdle to this sorry saga and that was having to have a telephone conversation with one of my new GPs before starting the medication.

She called me up and discussed it all and then… ‘fat shamed’ me.

She’s not met me in person, doesn’t yet know my medical history or anything but she took one look at my BMI and made assumptions about me. I instantly felt awful, responsible for all these issues and like the diabetes is all my fault. I felt deflated.

This is how the conversation went:

Doctor: “I see you’re diabetic and we should start you on some medication. But I am looking at your BMI, (and then she tutted) well what are YOU going to do about this”

I said “ well I’m going to try and lose weight, but I don’t actually eat that badly : and I’ve been trying to follow diabetic recipes and lost…” she interrupted and sniggered at me, and made a noise that sounded like “Pah” . Before I could tell her that I’d lost 5lbs since being diagnosed two weeks ago.

So then I tried to explain again and she spoke over me and said ” I want to know what are YOU going to do” and I said “I just explained” and she said “ I don’t like this BMI AT ALL, this is terrible” so I said “no neither do I, I’ve been trying…” again she interrupted me ” OK I’ll put you on this medication but YOU need to do SOMETHING” . Again I tried to explain what I had been doing and the endless doctors visits and blood tests that had been ignored by my previous GP. Not to mention my pleads for referrals to dieticians, but she wouldn’t let me speak despite asking me what I was going to do! And on it went. Me justifying myself about my weight like I have done all my life…. The thing is I’ve been justifying myself since being medically underweight too.

Yes, I am overweight, obese in fact, but she has made assumptions about me without talking to me properly. Perhaps she assumes that I sit around eating cake all day, or that I over eat? Perhaps she assumes that I like being like this? Or that it is my fault?

What she doesn’t know is that there has been a long and winding journey in getting to this point. She also doesn’t know that before I first encountered diabetes when I got diabetes in pregnancy 15 years ago, then in subsequent pregnancies, was that I was actually medically underweight and battled then for answers too. Only to be rubbished then.

And I promise you, I haven’t changed a single thing about my lifestyle from that point until now, except acquire diagnoses for long standing health conditions such as EDS and an EDS related heart condition (from birth , not from being overweight I might add) and pernicious anaemia to name a few.

I got quite upset after the phone call and started to think about everything I’d done or not done and felt a lot of guilt about being diabetic.

I started to think about where it all started to go ‘wrong’ for me in the weight department. I had gestational diabetes in each of my 3 pregnancies which made me gain almost 5 stone very quickly despite being on insulin injections. Each pregnancy has made it harder to shift the weight. And over time the weight just started piling on. Without me literally changing one thing about my lifestyle.

Hard to believe but it’s true.

So a dramatic weight gain of this proportion, in my opinion, was odd.

Yes I know that we tend to gain a bit of weight as we get older . But we are talking a dramatic weight gain.

I now weigh more than double what I weighed before I was pregnant for the first time!

When I’ve tried to explain this to doctors and other people that didn’t know me before my weight gain, you see in their eyes the lack of belief that someone could change weight that dramatically with no known cause.

But the photos prove it.

From underweight :

To morbidly obese :

Without changing anything in eating habits or exercise...

Then I got thinking about my ‘skinny days’. And the memories came flooding back. People used to make assumptions about me then too. Friends and family used to be shocked that I could eat a fair amount of food and not exercise much yet look like this:

Then I remembered the abuse I used to get. See the thing is I may get fat shamed now, but it’s not nearly as vicious or frequent as the ‘skinny shame’ I used to receive.

Yes. Not a subject we hear of very often. Is it even a thing? Skinny shaming…

I’d be walking down the road minding my own business and a car would drive past. People would shout out cruel things like “Anorexic” or “ Eat a burger for fucks sake”.

I once had someone approach me in the street. She crossed the road and came up to me and said “Are you anorexic” I said “No” and she said “well you look like you are and you look like you’re dying”. I was left standing there in total shock and really ashamed. So I started to wear bigger clothing to hide my body. I got a real complex about my looks and my self esteem took a nose dive. When discussing this problem with friends or family they would just roll their eyes.

There is no sympathy for people that are too skinny.

I tried going to dieticians and had some tests done to find out why I could not put on weight. All the tests came back inconclusive, but with a diagnosis of an inflammatory bowel condition.

So I got on with life. But as my weight went up and up, I started to feel the same embarrassment creep over me as when I was underweight.

Even when I was a normal weight people that knew me would be shocked how I’d changed and feel the need to comment on my weight.

“Oh look at you , you’re finally putting on weight” … “It’s really funny seeing you with a bit of weight on you, it’s about time” etc etc blah blah blah BLAH

Then I went back to covering my body, worrying about what people would think. And this was before I entered the official ‘overweight’ category. On top of having to deal with underlying conditions, it can be really damaging to one’s self esteem.

So when the doctor called me and ‘fat shamed’ me, after all the hell I’ve been through after the last few months. I felt I had to put pen to proverbial paper.

The point of this rant is that it didn’t matter what weight I was. People felt compelled to comment.

Whether I was underweight, gaining weight, overweight or obese (and I have been in all 4 categories) the fact remained; people make assumptions about you and your appearance.

They feel the need to comment, ask intrusive questions, make jokes and judge you.

They have no idea the story behind your appearance.

They have no idea about the person behind the BMI score.

But the effect is the same. It leads you to have low self esteem and make excuses about my eating habits or the content of my wardrobe. Things that are personal.

The bottom line is people don’t have the right to judge others by the way they look. Ok I guess the doctors’ job is to be concerned about my weight, but did she have to patronise me, interrupt me and make me feel like shit?

Did she have to make assumptions? Couldn’t she have asked me about my BMI and let me explain instead?

Does it really matter to anyone (who is not my doctor) if I am obese or underweight? Why does it bother other people?

Surely the questions people should be asking themselves about me are am I a good person?

Am I a good friend?

Am I a good mum? Wife? Citizen? I certainly try to be.

So to the next person who thinks about judging someone’s weight or appearance, maybe it’s a good idea to remember that everyone has their own personal story.

And to the next person that wants to be rude enough to actually ask, I have 5 words for you:

Mind your own damn business !!

Judge The People Making Unwanted Advances, Not Those Who Receive Them By Kelly Grehan

When I was 17 I went to a birthday party in a school friends’ house. I wore a short blue dress, with a high neckline, flesh coloured tights and blue velvet shoes with heels that were about an inch high.

I wore that dress hoping I looked attractive. I expect I was hoping one of the boys there, mostly fellow school friends, would try to kiss me.In the event, none did, but the father of the birthday girl, a particularly rough man, whose wife was in another room, put his hand up my dress and on my bum. One of the boys I was with, bravely told him to stop. The man replied “don’t fuck with me boy, I’m a Millwall supporter.”

We all laughed and the night carried on. I don’t recall feeling particularly upset. 20 odd years later I look back on the incident with horror, that a man probably older than I am now would think it’s acceptable to touch a teenage girl.

Then there was the time I went to a Halloween ball when I was a university student. I guess I was 19. Not long before The Spice Girls had gone to the premier of their film wearing colourful bras and blazers, without shirts and I thought they looked amazing. I worked as a health care assistant in the holidays and my flatmate and I decided it would be good to go dressed as sexy nurses. We pinned up the hems on my uniforms, wore stockings and wonder bras, which were the big fashion item at the time, with newspaper articles about them, seemingly every day. We let the zips on the front of the dresses stay just low enough that a decent bit of cleavage was on display, hoping we looked as good as Geri Halliwell. When we arrived a friend of my boyfriend introduced us all to a friend of his. My boyfriend went to the bar and the friend of a friend put his hand up my skirt and undid my stocking and brushed my knickers. I automatically slapped him round the face and ran into the toilet. When I returned he was telling my boyfriend there had been a misunderstanding. He apologised and said it was difficult for men to resist when women dress so provocatively. I said not to worry and he then proceeded to put his hand on the back of my dress. I walked away.

Later the friend who introduced us shouted at me about how unreasonable I was not letting this guy round to my house for the after party drinks!

I never saw him again, thankfully. I learnt a valuable lesson that night – women will always be blamed for the actions of men.

On neither occasion did I think of going to the police, or even in the first instance phoning my parents to come and get me.

I’m not sure why I felt the need to describe what I wore on both of those occasions. What I was wearing should be irrelevant, but we all know it isn’t. I know that what I was wearing on both occasions will be scrutinised by people reading this story. Oddly enough I can’t recall what either of the males were wearing, and as a teen I must have gone out hundreds of times, but I struggle to remember what I wore on most times. I think I recall it with these instances because subconsciously I attribute some of the blame to my choice to wear these outfits.

I also feel compelled to mention that on neither occasion was I drunk. On the first incident I would have consumed what I always drunk at house parties- 2 bottles of alcopops, as agreed with my parents. At university I would have been drinking snakebite, but this occurred at the very beginning of the night, and realising I needed my wits about me I stopped drinking then. It should be irrelevant, of course, but somehow I know it isn’t for some people.

Neither incident has scarred me for life. I know very few, if any women who do not have similar stories to recount. I would probably never have felt a need to commit the stories to print if it were not for reading the comments directed at Charlotte Edward’s in the last few days.

For anyone who doesn’t know, Sunday Times journalist Charlotte Edwards has written that Boris Johnson groped her upper thigh under a table at a private dinner in 1999 when he was editor of the Spectator magazine.

I’ve heard people questioning why she did not react at the time, or complain then. Well without knowing Charlotte I can take a pretty good guess. It simply wasn’t worth it. I presume she was at an early stage in her career. Speaking out at the time would have been to invite attention on herself, none of it good. Humiliation was likely.

Even now, as a successful journalist, in a relationship with a very prominent journalist (Robert Peston) there are those accusing her of attention and fame seeking or looking for a career boost. It’s not clear to me in what way they think she will achieve this, or why, if this was the case, she would not have done this earlier.

There are also those that take the view that men touching women are either doing it by accident or that it is the only way of knowing if a woman is interested in them. Isn’t it funny how men don’t seem to touch each other in intimate places by accident? Is talking not an appropriate means of finding out if someone is attracted to you?

Then there are those that seem to think she should count herself lucky: that women enjoy being inappropriately touched. I’m genuinely shocked at how many of these comments come from women.

There is something every single one of these types of stories has in common – power.

From Trump grabbing women by the pussy, to Weinsein ruining carers of anyone who rejected his advances, to the men at the Presidents Club who told waitresses to ”down that glass [of champagne], rip off your knickers and dance on that table” to Boris Johnson, the magazine Editor putting his hand on Charlotte Edwards inner thigh when she was a journalist starting out – in each case the men concerned knew the women had more to lose by speaking out than they did if the women spoke out.

And, in every single case, you will see more comment about the women’s behaviour – before, during and after the incident then there is on the mans.

And this is why women don’t say anything at the time, and why they often wait until they themselves are in a more powerful position to say something.

Some men will continue to behave like this while society let’s them.

Why Words Matter By Lisa Bullock

“You are so GAY!” A person younger and hipper than me once said to me at work, when I was being particularly difficult one day. I have a feeling I was being dismissive about Friends, or Greys Anatomy or Skins or fidget spinners or Fortnite, or dabbing, or some other cultural landmark of which I am totally clueless, because I spend all my time watching old episodes of ER and imagining it is still 1996, instead of accepting that it is almost 2020 and I am knocking on a bit.

 

I digress. The colleague didn’t man to actually offer a statement on my sexuality. What they meant to do, is imply that I was a bit useless, unknowing, hopeless, stupid, yada yada. Instead of just saying that, they chose to use the word gay. I should have challenged them on it. I don’t believe for one moment that this person was a homophobe – but they were entirely guilty perpetuating inequality by misusing language.

 

“Oh come ON! All the kids were saying that 5 years ago…does it really matter? They don’t really mean gay people are bad! Oh my GOD lighten UP!

Well, actually, it does matter.

When you use language to negatively ascribe traits, you are cementing the idea that being gay means you are less than, wanting – unequal. In the same way that I regularly hear both men and women saying “stop being such a girl” when trying to say someone is weak, shy, scared, pedantic, bitchy or any other number of negative personality traits, these connotations seep into our collective cultural brains, and are dangerous for the body of people the words themselves represent.

How can we hope to create a more equal society when we chose to deliberately use words as a catch all for things we view as bad?

 

In a week where the language of our ruling classes and those who seek to make and administer laws which govern every facet of our lives has reached a terrifying nadir of spiteful carelessness, I’ve thought so much more about the language I use on a daily basis, and how those words might feel to someone.

We can use language to love, to be kind, to thrill, and most importantly, to help others understand us, and what we mean.

Language is powerful, and deserves respect.

Misusing that power can lead us down dangerous paths – we’ve seen that in our not very distant past, and it is not an exaggeration to say that humans have died as a result. In a world where it is increasingly easy to be heard through social media, comment and demonstration, use your voice but please, mind your language.

 

 

 

Victims’ Experiences Don’t Matter While Violent Men Continue To Be Rewarded By Kelly Grehan

So, Geoffrey Boycott is to be awarded a Knighthood. I would love to be writing now about how I don’t understand how playing a (slow) sport qualifies a person for a Knighthood, but instead I ask a more difficult question:

Why has a person with a conviction for beating a woman been given such an accolade?

We see lots of headlines about how false allegations against men by women ruin lives. Is this true? It seems to me that we see a lot of examples where a man ruins a woman’s life by committing a crime against her – be it violent, sexually or emotionally abusive and they are allowed to carry on as if nothing much has happened.

Because, the Boycott situation is far from an isolated example.

This weekend film director Roman Polanski won the Grand Jury Prize at the Venice Film Festival. In 1977, Polanski was charged with five offenses against a 13-year-old girl including rape by use of drugs and sodomy. Polanski pleaded not guilty to all charges, but later accepted a plea bargain of a guilty plea to the lesser charge of engaging in unlawful sexual intercourse (with a 13 year old). He served no jail time, after absconding abroad before sentence. He has also since won an Oscar.

Then there is singer Chris Brown who, in 2009, received Probation after seriously assaulting his girlfriend at the time, singer Rihanna. Since then he has performed at The Grammy Awards and been nominated for numerous other awards.

Fellow Knight of the Realm Sean Connery once said “I don’t think there is anything particularly wrong with hitting a woman – although I don’t recommend doing it in the same way that you’d hit a man. An openhanded slap is justified – if all other alternatives fail.” His first wife alleges he physically abused her.

And let us not forget Tory MP Andrew Griffiths and Mark Field. Griffiths, who bombarded a constituent with explicit messages including some calling himself ‘daddy’ and who, according to The Guardian, was the subject of complaints of inappropriate touching and bullying by several colleagues briefly lost the Tory Whip, but had it reinstated to allow him to vote for Theresa May’s Brexit deal.

Mark Field manhandled a Green Peace protestor, including grabbing her by the neck. He remained in the party after Boris Johnson decided no investigation was needed.

Since being released from a sentence for rape Mike Tyson has had a show on broadway, appeared in a film and become the face of an advertising campaign.

Of course, no list of this nature is complete without a mention of US President Donald Trump, who was elected after footage of him of him saying “I’m automatically attracted to beautiful [women]—I just start kissing them. It’s like a magnet. Just kiss. I don’t even wait. And when you’re a star they let you do it. You can do anything … Grab them by the pussy. You can do anything.” Despite this, and the numerous sexual allegations against him, he was elected President.

So, when we hear that society take a dim view of violence against women and girls, forgive me if I continue to believe that’s not true.

The True Cost of Proroguing Parliament By Kelly Grehan

Brexit has brought much harm to this country: it has brought to light divisions that we always hoped were not there, it has somehow legitimised hatred and it has, (for reasons I am not sure I will ever understand) led to circumstances which have caused us to have Boris Johnson as Prime Minister.

It has also led to the numerous other harmful policies of the government to escape scrutiny by the media and therefore the members of the public whom are not directly impacted by them miss knowing they exist.

Now we must add another tragedy to the list of consequences: prorogation has damaged Parliament’s ability to fulfil its primary purpose: to bring about legislation -all laws going through Parliament were automatically dropped when Parliament in effect, shut down on Monday.

I saw the impact of bad government legislation first hand earlier this year. I was privileged to join campaigners from the Motor Neuro Disease Association at an event in Parliament marking the publication of a damning report from the All Party Parliamentary Group (APPG) for Terminal Illness. The report found the current rule – that a person must have a life expectancy of six months or less to get fast access to benefits – is ‘outdated, overly-time consuming and demeaning.’ 60 MPs attended the event so it seemed Madeleine Moon’s MP’s Private Members’ Bill to #Scrap6Months could become law, but the proroguing of parliament means it has officially fallen. This means the hope that those diagnosed with a terminal illness would no longer have to prove they had under 6 months left to live is over. This is cruel for any person facing up to terminal illness and particularly gruelling in the case of anyone with an illness like motor neuro disease, which has no cure or treatment and for which the decline in health is rapid.

My heart breaks for the campaigners I met who worked so hard to bring attention to this situation.

Other scrapped bills include:

– The Divorce, Dissolution and Separation Bill, which would have allowed people to divorce without needing to accuse their spouse of wrongdoing or wait several years.

– The Animal Welfare (Sentencing) Bill, which would have increase the maximum sentence for animal cruelty from six months to five years.

And

– The Domestic Abuse Bill which would have made it illegal for abuse suspects to cross-examine their victims in court.

With no idea if and when these bills will now come before Parliament there is now a real risk that they will be lost forever.

When people think about Boris Johnson’s first 6 weeks as Prime Minister, no doubt his losing 6 votes out of 6 will always be the main memory, but we must also, always remember the harm his cowardice in prorogating Parliament has caused by preventing progression in stopping important legislation progressing which would have improved lives.

80 Years Ago Parents Said Goodbye To Their Children To Keep Them Safe – Today Many Face The Same Awful Choice By Kelly Grehan

“They were so brave.”
“It must have been awful sending them away knowing you might not see them again.
“It would have been painful, but you would have done it; it was the best way of keeping them safe.
80 years ago Operation Pied Piper saw children voluntarily sent by their parents to live with strangers. Over 3,000,000 people, mostly children were moved from the cities where they lived to the countryside towns which were thought to be safe from the bombing campaigns which were sure to begin with the outbreak of the second world war.

The evacuation of Britain’s cities at the start of World War Two was the biggest and most concentrated mass movement of people in Britain’s history. It seems probably some people living in the places where the evacuees were taken to felt ‘swamped,’ worried for their way of life and about the impact on the schools and services they used with such an influx of people.
The children, labelled like luggage, were taken from everything they knew to places so alien they may as well have been in another country. Life in different regions was markedly different across 1930s Britain, with accents so pronounced they could be difficult for outsiders to understand and diets full of food that was unfamiliar and a way of life that was far removed from anything they had experienced.
When children did arrive in their new destination they were lined up and waited to be chosen by someone to take them home.
The thought of sending your children away to an alien land, to strangers you know nothing about sounds traumatic doesn’t it?
Then there is the thought of the ongoing suffering the parents must have endured with, sometimes, years of contact only through letter, no real control of how they are raised, no idea how they are changing physically and emotionally as they were not there to see it.
70 years on we hear stories of evacuees and their parents and it’s impossible not to feel empathy for every family split up by a war they had no control over.
…… it’s impossible not to feel empathy for every family split up by a war they had no control over.
That sentence I just wrote isn’t true is it?
Because where as I hear the sentences from the top of the page when people discuss the World War 2 evacuees I hear very different comments about those who try to get their children out of war zones around the world into safety.
“They should stay where they are and fight.”
“Any parent who would send their child somewhere they cannot protect them doesn’t deserve children.”
“Freeloaders coming here to scrounge.”
The pain of giving your child away, of sending them away from everything they know, including your love and protection cannot be imagined.
It’s a decision someone should never have to make.
Unaccompanied refugee children will have seen horrors that cannot be imagined: they have seen their homes destroyed, loved ones killed, been tortured or trafficked. They have taken long, terrifying journeys to reach safety and they will probably never see those who love them again.
Unicef say worldwide there are nearly 31 million children who have been forcibly displaced. Children under the age of 18 made up about half of the global refugee population in 2018, including many that were unaccompanied or separated from their parents – and, as such, at risk from abuse and exploitation.
But it often seems that people view these children with hatred and greet any attempts by others to help them with outright revulsion. Indeed I expect to receive some nasty messages once this article is published because every time I have commented in support of refugees abuse has followed.

The Dubs Amendment, passed in May 2016 required the government to act “as soon as possible” to relocate and support unaccompanied refugee children in Europe. Britain promised to take 3,000 refugee children. So far it’s taken 220

Currently, unaccompanied minors in Europe who have relatives in the UK can apply to join them.
It is a lengthy process, with children often waiting months or even years to be moved to Britain after submitting their applications, There are currently an estimated 30 children in Northern France and 25 children in Greece known to have been approved for protection under, the Dubs Scheme who have been waiting more than 2 months to be transferred.
Why does the thought of those children alone and displaced not fill people with horror or sympathy?
The current system of transferring asylum-seeking children in the EU to join family members in Britain is set to come to an end in the event of a no-deal Brexit.
I don’t see any outrage about this.
Paddington Bear begins with Aunt Lucy telling Paddington “Long ago, people in England sent their children by train with labels around their necks, so they could be taken care of by complete strangers in the country side where it was safe. They will not have forgotten how to treat strangers.”
Sadly, I don’t think that is true.

When My Child Acts Differently Your Judgement Can Make Or Break Our Day By Emma Ben Moussa

I’m not sure why, but all of a sudden I had the urge to write… you see I have been up all night and I’m covered in bruises and bite marks… but it’s ok because the person that does it to me isn’t doing it to hurt me, he’s doing it because he loves me and this is how he shows it.

Unusual I know but let me introduce you to Sami and hope that this may spread some awareness of autism so the world becomes a bit more understanding for him in the future. 

On the 27th May 2015 I gave birth to a beautiful second son and he was immediately different from my first, he screamed so much we were put in a separate ward, I thought wahey upgrade!

Sami was very loud, he spent most the day screaming, he could not be apart from me and my family felt very unsure about looking after him- so they didn’t and 4 years they still do not feel able to look after him for more than a few hours although they do love him with all their hearts. 

6 months in I remember shouting up at the ceiling asking what I did wrong, why isn’t he happy? (sorry neighbours). My first born had just started nursery and was a bit behind with speech and getting over excited easily, at least that’s what I thought, but despite the nursery trying their hardest to show me something was different with Aymane I was so wrapped up in my clingy baby that I did nothing. To be fair my health visitor believed Aymane was just over excited too. 

At 18 months my Sami started talking; he said ‘mum’ and ‘dad’ and even his cousins name ‘Jack’ but then within a month it was gone and he has never said a word since.

He started to try find other ways to communicate, if he wanted a drink he would throw a cup at me, if he wanted food he would guide my hand to the fridge but if there was something he wanted and I couldn’t guess it he would get so frustrated and start hitting his head on the wall or throw himself to the floor over and over again. 

At the 2 year review the wonderful NHS nursery nurse said “I’m sorry but we have some concerns here, we will come back out and visit you” and true to their word every month I saw a health visitor and the nursery nurse.

Let me thank them right now because without their 2 years of constant support I honestly don’t know how I would have coped, they were angels. 

Sami does not sleep, he just cant, maybe he will get 1 to 2 hours a night but then he’s up and when he is up, the whole family must be up.

When it was time for nursery they were straight with me from day one, Sami needs assessing. I already knew at that point that Sami was different, on the walk down to nursey he would try to run in the road, he would lick car tyre and fence posts and he would take peoples solar lights out their gardens so he could lick them. 

At 3 Sami saw a paediatrician and we sat there for half an hour, I told him about Sami not sleeping, smearing his own poo on the walls, lining up anything that can possibly be lined, having absolutely no danger awareness, not being able to talk, eating inedible objects, chewing on things that should not go anywhere near your mouth, cracking his teeth on rocks and he diagnosed him there and then:

AUTISM 

I think I cried for days, now, I feel silly about that.

Sami is a gift, a gift no one else is lucky enough to have. Sami loves me and he shows it intensely, he’s stuck to me like glue, his smile melts my heart and when he has sensory overload no one but mummy will do. You need to squeeze him so tight and block out this busy world and the feeling that I am this angels world, is one I was always treasure. 

I went to the library the following day, I read everything I could, soon it became difficult to leave Swanscombe because Sami likes routine. I believe he feels safe in his home town because Swanscomber’s are kind, they are accepting, a community I’m proud to not only belong to but have the honour of being their borough councillor.

I set up an autism play group in Swanscombe because I was tired of going out and being judged. Too many times I have had people tell Sami he’s too big for a pram and to get out and walk, or ask him what’s wrong with him.

Sami cant talk, if you get in his face and ask him questions he cant respond to, not only are you frightening him you are building up his anxiety so when he lashes out at you he’s not being naughty, he is in a meltdown.

When Sami is happy he flaps like a bird; it’s called Stimming.

He’s quite happy in his mobility buggy rocking backwards and forwards watching the trees and enjoying nature when all of a sudden a face is there, the face is talking to him, he doesn’t know you and he doesn’t know what you’re saying but the more he doesn’t respond the louder you get. Mummy tells you to please give him some space as he’s autistic and more often than not mummy gets told “oh he will grow out of it we are all a bit autistic.”

He most certainly wont!

He was born this way, he’s perfect. I feel so sorry for those wonderful autistic children who had to mask their autism to try and conform with what is seen as normal. 

Sami is now 4 and my baby is off to a wonderful special needs school in September called Ifield, where he will learn Makaton and we might eventually be able to communicate with each other.

We have a bright future ahead for him, it may not be the one I imagined but he’s getting all the help he deserves thanks to the wonderful NHS and Cygnets pre school.

My hope for Sami is that people become aware of autism, he’s not naughty, he’s not stupid.  He is truly amazing, battling sensory overload everyday! 

My eldest is my superhero, he adores Sami and sees him as special not odd and most the children around us do too, it fills my heart up seeing Swanscombe accept and include Sami.

We even get birthday invites from Aymanes friends for Sami, which is something I never thought would happen. 

Aymane is only just diagnosed with ADHD, I missed it, I never noticed because Sami’s care is so intense. I realised what Aymane’s flapping was when I learnt about Sami but his school do not see Autism in him so he just got diagnosed with ADHD.

I have one child that talks too much and one that doesn’t talk at all. I also have the most perfect children, they are my biggest challenge, my greatest achievement in life. They made me stronger than I can ever imagine. I can walk in to a council chamber with no sleep, covered in bites and bruises and think “I’m an autism mum no opposition can faze me. 

Although I have to admit I do occasionally lock myself in the bathroom just for some peace. 

My point in writing this is because, A I needed to get it out and B I would really appreciate people learning about Autism.

It’s a hidden disability, I also have a hidden disability and I find the judgement is sometimes harder than the actual condition.

If you see me being bitten by my child his not being naughty, something has made him anxious he needs to be close to his mummy, he needs to feel mummy, be completely enveloped by mummy so that he is safe again. I know it sounds strange but its part of Autism.

My boy is a superhero and I am a lucky mum.